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Baruch Blumberg defended the rights of hepatitis carriers

Baruch Blumberg used his 1976 Nobel lecture to warn against shunning virus carriers, and later advised lawyers who won children with hepatitis B the right to attend school.

Baruch Blumberg
Baruch Blumberg · 1925–2011
Person
Baruch Blumberg
Lived
1925–2011
Field
Medicine
From
American

The story

Blumberg's research revealed something new about infectious disease: a person could carry the hepatitis B virus for years, often without feeling ill, and still be able to pass it on. The Nobel committee in 1976 described this chronic carrier state as one of the important new principles his work had clarified. It also noted that not every carrier is contagious, and that modern tests could tell the difference.

Blumberg knew that the discovery had a shadow side. Identifying people who carried hepatitis B for life could lead others to fear them. Instead of a victory lap, he devoted his 1976 Nobel lecture to bioethics, predicting that the discovery of the carrier state would lead to calls to exclude and quarantine chronic carriers and to deny them health care. He came down firmly on the side of their liberty, and stated that in medical practice it was better not to test for the condition.

His warning soon proved accurate. The following year the teachers' union in New York City moved to exclude known carriers from the city's schools. At the time, developmentally disabled children who had lived at the Willowbrook State School were being moved into public schools, and as part of hepatitis experiments carried out there, most had been tested without their consent and more than 50 carriers identified. A panel convened by the city's public health department decided to bar known carriers from school and to impose blood tests on their classmates without informed consent about the tests.

Blumberg, who had been left off that panel, advised the lawyers who challenged the policy on behalf of the excluded children. The litigation reversed the policy.

The case set an important precedent for how society would treat people with infectious diseases during the AIDS era that followed. Blumberg's position was that identifying an infection should serve prevention and treatment, not exclusion. Today the World Health Organization encourages testing so that people living with hepatitis B can be linked to care and treatment.

Why it matters

Blumberg's stand helped establish that people living with a chronic infection should not lose their rights to education and care because of fear.

About Baruch Blumberg

Physician and geneticist who discovered the hepatitis B virus, co-invented its blood test and vaccine, and shared the 1976 Nobel Prize, work credited with preventing millions of liver cancers.

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Baruch Blumberg
1925–2011 · Medicine
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Sources

Another act of tikkun olam. This is part of tikkun olam, the Jewish idea of repairing the world, and every one of us can add to it.

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